You’re Still You

Before I went in for surgery a co-worker of mine told me that I might feel depressed after surgery and that I might go through a grieving process at the loss of my reproductive parts. I just looked at her and said, “I kind of doubt it”. I didn’t want to argue with her but anyone who really knows me knows that I’m just not hard wired that way.

This Friday will be four weeks post-hysterectomy. My sister asked me if I noticed any changes, like feeling more emotional. My answer was “no”. But then every time I react to something I think, “Is this it? Am I more emotional now?” Not that it would be a bad thing to be more emotional because in my life, the people around me have been critical about my lack of emotion. I’ve even thought something might be wrong with me that I’m not more emotional. Don’t get me wrong, I’ve always shed a tear for orphaned babies or puppies or any of the Bud Light commercials that feature the horses but when it comes to emotional baggage and wearing it on my sleeve? Not so much…. I go sleeveless.

Last week I witnessed the passenger of a vehicle that was stopped in front of my neighbor’s house toss his trash into her yard. I about lost my mind over it. Having been just out of the shower and dressed, I still had my slippers on and my hair was drying naturally, which meant I had BIG hair. When I saw the guy throw his trash I bolted out the door pointing and yelling at him to pick it up. He didn’t budge but the driver started to get out of his truck like he was going to “get in my face”.  I told him he was barking up the wrong tree and that he better get his ass right back in his truck, which he did. I’m not a particularly big or tough woman but I don’t carry a lot of fear either and I think that alone had these guys a little afraid of me, all 5’1 of me. It was weird. Later I thought I might have overreacted and I wondered if it had anything to do with “mood swings”. Nah… I would have done that a month ago. I don’t crusade over every little thing, but my neighbor works hard at keeping her house/lawn looking nice and I couldn’t let this one slide.

My point is this: if you BRCA sisters decide to go full on hysterectomy or oophorectomy, you’ll still be YOU post-operation. Yes, it hurtles you into what they like to call surgical menopause but with or without your lady parts, you’re still you. Most likely your doctor isn’t going to want to put you on Hormone Replacement Therapy (HRT) due to your risk of breast cancer (if you still have your breasts) so unless it’s completely unbearable, you won’t have the HRT to ward off mood swings or hot flashes.

But if you’re lucky, like me, you won’t have those pesky side effects of menopause. They might come later, who knows… There have been time when I’m sleeping at night, I wake up and I’m too hot but I can’t tell if that’s a hot flash or not. It doesn’t happen during the day so again, who knows…. A little acne showed up on my face after the first week but that has since cleared up. So far the only solid thing I’ve noticed is feeling tired more easily. A friend of mine who is a physical therapist told me that the anesthesia from the surgery stays in your fat cell for six months so when you’re tired, you should sleep. I have a hard time believing that but the fact remains that I do feel more tired than I normally would.

Besides being able to walk my dogs again (2 1/2 weeks post-op), I’ve been driving to Red Rocks Amphitheatre (also where I work) to walk the stairs. I’m not running or lifting yet but hopefully I’ll be able to after my check up in two more weeks. It does my heart good to be passing people on the stairs. I’m not as out of shape as I feared I would be.

A few tips to getting back to normal life:

  • Ask for help when you need it
  • Eat really healthy
  • Walk as often as you can — don’t let people wait on you all the time; do things for yourself (except when it involves lifting anything over the weight of a gallon of milk)
  • If you don’t feel like seeing people, ask them to stay away
  • Shower daily — seems silly to even mention but it’s important
  • Get outside — the sunshine and fresh air will help you feel more like yourself

The weather has been so beautiful in Denver, which makes me want to be outside all the time. In two more weeks I’m counting on being cleared for any activity, which means I’ll be able to get my gardens ready. But knowing Mother Nature, she’s probably got one or two more snow storms in store for us so I should probably just be patient and wait until after Mother’s Day, like any good gardener would do!

Happy almost-Spring!

I’m a Hyster-Sister

Last Friday, the 20th, finally came and I was ready! I checked in at the surgical desk a couple minutes early and a nurse came to get me a few minutes later. I had no nerves, no fear, no second thoughts. If I could have undergone a hysterectomy four months earlier, I would have. In the pre-op room, the nurse had me change into a hospital gown and nonslip socks and then sent me for a urine sample to make sure I’m not pregnant… She covered me with warm blankets before getting the IV started and then she took samples of my blood to check my kidney function and blood counts.

The surgery before me took longer than expected, which pushed my surgery back by almost 2 hours so I sent a quick text to a couple of people to let them know we were delayed. Dr. A came in to see me, as well as her assisting physician, resident physician, and the anesthesiologist. All were friendly, positive, and attentive. In fact, every single person I encountered at the hospital was personable, caring, and kind. When it was time to go, a nurse pushed my pre-op bed down a maze of halls and into the destination operating room where I moved from one bed to the other. The anesthesiologist asked me to lay back where he gave me an oxygen mask and said he was about to give me the “I don’t care medicine”.  And that was it! I woke up several hours later in the recovery room.

I asked the nurse in the recovery room how the surgery went and she assured me it all went well. I stayed still just listening with my eyes closed until they wheeled me to my room where I’d spend the night. I went from feeling alert’ish to asleep’ish to somewhere in between. I don’t remember much except that my bottom lip hurt, my throat felt phlegmy and dry, and when I opened my eyes I seemed to see two of everything. But I wasn’t that uncomfortable. For dinner I ordered chicken noodle soup and crackers because you can never really go wrong there. My nurse had me take a walk down the hall, which was tricky. I felt fine starting off but quickly felt weak and a little light headed. Afterwards, she decided it was time to take my catheter out, which is never really pleasant, but at least it’s a step in the right direction.

For as often as the nurses woke me up during the night to take my vital signs, I felt rested in the morning. I got up several times to use the bathroom so they knew I was well hydrated. My only problem was my blood pressure, which refused to go higher than 80/50, but the doctor said that since my pulse rate was normal, they’d go ahead and discharge me.

I was home by 11am on Saturday, tired but happy to have it all behind me. By Sunday I was really sore but doing my best to get up from time to time to walk the house. Monday I decided the Percocet was too much so I decided to stop taking it. Percocet makes me feel fuzzy, it makes my blood pressure stay low, and it causes constipation so I decided it might be worth a little discomfort to not feel so “blah”. I also dropped the Ibuprofen because I worry about the demand it puts on my liver and kidneys but when a fever started creeping up, I went right back on it. That night I slept 12 hours. Yesterday (Tuesday) was a pretty good day. I dropped my dosage of Ibuprofen to 400mg every 4-6 hours. This morning (Wednesday) is day 5 post op and besides feeling a little pressure in the abdomen and the skin is a little sensitive, like it’s been bruised, I don’t really have pain.

Speaking of pain, I want to bring something up. I’m not one who runs to a pill every time I feel the slightest pain. In fact, my first thought is to drink more water or to adjust my nutrition. Going into surgery is different though. I knew I’d have to have help managing the pain but I was afraid of side effects and of course, how it would affect other organs. So, I did a little investigating. There’s quite a bit of misinformation about medical/recreational marijuana but as with any drug, it has it’s benefits. I wasn’t interested in smoking a joint or anything like that but I was very concerned about nausea after surgery or sleeplessness due to pain.  So I talked to a friend who schooled me in the world of Cannabis. Based on what I learned, I went to a dispensary (it’s sold legally in Colorado) where another friend of mine works and she was able to point me in the right direction. I bought a vape pen, hash oils (CBD for pain and THC for nausea) and some patches, that last for 12 hours. The nice thing about a vape pen is that it is unable to give you more than one dose at a time so for someone like me, who doesn’t smoke weed, it’s a good thing so I don’t over do it. The patches are completely odorless and effective. I used both of the patches and have only needed the vape pen once but I love having the option of going to something other than a narcotic (Percocet) to alleviate pain or discomfort, especially without the side effects like constipation or stress to other organs. It’s all about choices, really!!

At this point, I’m ready to move on with my life for a while. I know fully that breast cancer is my higher risk but I’m not ready to walk down the Double Mastectomy Road just yet. My labs from the hysterectomy came back benign so I’ll relish in that for a few minutes.

Chicken soup

About 12 years ago my younger daughter had a terrible fever and had been sick for a few days. The pediatrician surprised me when she offered me a recipe to make instead of putting my daughter on some medicine that probably wouldn’t work anyways.

I bought the ingredients and made it for my daughter that night. Within hours her fever broke and she was feeling better. Since then, it’s been a staple in my house and I keep some on hand in the freezer for those “just in case” moments. Yesterday I made about 3 batches so I’ll have it during my recovery time after surgery.

It’s a simple chicken soup recipe that was part of a study from the University of Nebraska. All the root vegetables give it healing qualities and it is also tasty! Jewish families know chicken soup as “Jewish Penicillin” so it’s nothing really new, but it’s cool that the doctor offered this to me instead of a pill. Here it is:

  • 2 quarts water
  • 2 tsp salt
  • 3 1/2 lbs whole chicken, with skin but without neck and giblets
  • 1/4 tsp pepper
  • 1-1 1/2 cup carrots, about 1/2″ thick
  • 1-1 1/2 cup celery, about 1/2″ thick
  • 1-1 1/2 cup onion, coarsely chopped (I like yellow onions)
  • 1-1 1/2 cup sweet potato, cubed
  • 1-1 1/2 cup turnips, cubed
  • 1-1 1/2 cup parsnips, cubed
  • 1/2 cup parsley, very coarsely chopped

Put water, salt, and pepper in a large stock pot (8-10 quarts) and bring to a boil. Add the whole chicken, return to boil. Turn down the heat and simmer for about an hour.

While chicken is simmering, cut up remaining ingredients.

Remove chicken from pot to cutting board. Add vegetables to the broth and simmer about 1/2 hour. While vegetables are simmering, disjoint chicken, remove skin, remove chicken from bones and cut into chunks or shred. Return chicken to pot, add parsley and simmer about 1/2 hour longer.

I love to serve it with a side of french bread and butter. Enjoy!

A geneticist with a huge heart

A New York Times article posted yesterday features one of my personal heroes, Mary-Claire King, who discovered the BRCA gene and identified its mutations as harmful to the human body, particularly as it relates to breast, ovarian, pancreatic, and skin health. It’s a great interview and I’m thankful for her tenacity, courage, and progressive thinking.

Bob

This letter was written by a soldier in the Vietnam War, 48 years ago today. The soldier was my biological father, Robert (aka Bob; aka Bobby), who I never met. In a few days, Feb 11th, he would have been 70 years old.

Dear Family

I haven’t written a letter for some time, so I thought I’d write while I’m supposed to be working. I’d much rather do it now than do it on my time off.

I am planning a trip to Washington D.C. for my birthday. I was planning on New York but it’s a bit far for me to go. I’ve gotten a three day pass and plan to use it in its most liberal sense.

Anyway, it’s birthday month for the Trotter’s, (except for my weird sister who was born in that odd month of September), so this is my birthday card to everybody, because I’m too lazy to tromp through the birthday card racks, and too cheap to buy three let alone pay for the postage.

I’m getting along fine here. As usual, I do as little as possible and hide as much as I can. Sometimes I read a dirty magazine I get out of LT Cook’s desk drawer so I don’t go illiterate. I’m working for the government so I have to act like a government worker. Look as busy as possible–fool everybody– don’t do anything you don’t have to do– never give a direct question a direct answer–and most of all, do as little as possible. I’m enjoying myself immensely.

I haven’t heard any word about my trip around the world. Our passports must have hit a snag while floating down the Bureaucratic River. If everything goes according to military logic, our orders should arrive by 1984. If that is so, I won’t be able to go with the guys. DARN.

Write soon and all that stuff. 

Later, 

Bob

Several years ago, mainly out of curiosity, I contacted the Department of Defense as Bob’s next of kin and asked for any information they could provide as it relates to Bob’s time spent in the Vietnam War. They sent me what I believe to be his complete file and five medals he earned during his active duty, which he never had the honor of receiving.

Bob was drafted to the Army in May of 1966. He was two years out of high school and taking courses at the community college when his number came up in the draft. His dad, Willie, owned a plumbing store called “Hollywood Plumbing” that he started from scratch and he pinched every penny he could. He provided a nice life for his wife, Trudy and for Bob and the other two kids, Gaynelle and Bruce. I feel sure that Bob’s dad was hoping he’d one day take over the family business, but that would not happen.

My birth mom, Kathy, met Bob shortly after he spent time in the Army — he was released for medical reasons in 1968. They were young and in love — crazy for each other. It wasn’t too long before Kathy found out she was pregnant with me…  It was 1969, a pretty tricky time for a young lady to be pregnant and unwed. Bob decided he wanted out of the relationship because he wasn’t ready to be a dad and Kathy had trouble making sense of her predicament to her own mom and dad so she found herself alone. She remembered a friend who had given a baby up for adoption so that’s what she decided to do with me. She and Bob broke up but he helped her a little financially until I was born and then that was the end of their relationship, at least for a while.

I was three days old when my parents came to pick me up from a place called Waverly Children’s Home. I was #5 of six kids (Susan, 12; Todd, 10; Doug, 4, Kenny, 11 mths). I was the second of the adopted kids — Kenny was adopted 9 months earlier, also from Waverly. (The 6th kiddo came five years after me and was from Korea — Mary, who was 10-years old.) It’s confusing, I know, but it always made perfect sense to me!

I’ll skip over my entire childhood to the time when I was 23-years old and holding my first daughter in my arms thinking to myself, “how would someone have the courage to walk away from this experience?” I mean, there’s no other way to grasp the situation but by resolving that it is LOVE that causes a woman to be able to give a child away. There could be a number of different short reasons but the main reason is that she loves her child and wants her child to have a better life than she could provide. In my mind, that’s how adoption happens. Adoption is a loving act from the giving end and from the receiving end.

I decided to reach out to Waverly Children’s Home to request “non-identifying” information about my birth mother. Mostly, I wanted to find out if there was any medical history I could have for my own daughter’s sake. But as a footnote to my letter to Waverly, I asked also for “identifying” information IF it was available. I waited for a response for several weeks before the phone call came telling me that I had made a connection with my biological mom.

My birth mom, Kathy, and I spent hours on the phone. We shared so many letters and pictures with each other. My initial questions were things like, “do you believe in God?” and “I’m left-handed, who else is?” They were all just really random questions but things I had pondered for 23 years. Her first picture she sent to me was such an affirmation that she was indeed “my people”. I looked just like her. I looked just like Bob too.

Kathy had the sad duty of telling me the rest of her story with Bob. It didn’t end when I was born. I was expecting to hear that they had broken up and he got married and I have half brothers/sisters out there somewhere but that was not the case. Once I was born, Kathy moved on and so did Bob. He married a pretty gal named Patty and Kathy married a nice man named Ron, but both of their marriages ended.

In 1978, Bob showed up on Kathy’s front door step with a vase filled with flowers. He told her that if she would forgive him, that the vase would never be empty again and with that, Kathy and Bob were reunited.

They planned to get married and Bob suggested looking for their baby girl they gave up for adoption nine years earlier. Kathy had to explain that it didn’t just work like that and that they couldn’t just ask for their baby back and expect it end like a fairy tale.

Bob’s sister, Gay, believed that his reuniting with Kathy was his attempt at making amends with her (and me). He made attempts to “make things right” with other people in his life. For example, he had borrowed a tool from a man 10 years earlier and returned it with a note stating he was trying to clear his conscience. Most people were quite receptive to his attempt to make things right.

One morning at Bob’s parent’s house, everyone was getting ready to go their separate ways. Kathy had work… Willie had the plumbing shop… Bruce had school. Trudy, Bob’s mom, noticed Bob seemed “off” and asked him what he had up his sleeve. Bob, indulging her, grabbed his sleeve and acted like he was taking a peek inside. He said, “why don’t you go to the farm and pick some fresh green beans for dinner”. She agreed it was a good idea and invited him to go with her but he declined.

When Trudy returned home several hours later, the curtains were drawn and the doors were locked, which alarmed her. She called Willie, who came home. He searched the house and finally found Bob in the basement. He had committed suicide.

Kathy said the next bit is a blur to her. Based on an essay Gay wrote on “Death & Dying” after Bob died, it was a blur for everyone involved — there isn’t a lot anyone could tell me during that time other than how profoundly sad they all felt. I can’t imagine losing a sibling or one of my children to death, let alone suicide. But I would imagine being in Kathy’s shoes and trying to wrap my head around what was happening in her heart. To lose the love of your life not once, but twice. That is something…

When I met Bob’s parents for the fist time, Kathy was with me. They always liked Kathy but she’d be hard to not like. They were so very sweet to me and my little family. I didn’t know what to expect and I certainly didn’t know how to act. As we were pulling up to their house, my (ex) husband asked Kathy how Bob “did it”. I had never asked because it didn’t matter to me. But Kathy responded that Bob had hung himself in his dad’s office in the basement of the house we were pulling up to. Suddenly, if I wasn’t already nervous enough, I was kind of a wreck. It was as if there was a dark shadow hovering over the house… As I looked around the neighborhood, the other houses were so cute and the bushes and trees were well-groomed, but my grandparent’s house was overgrown with bushes and grass. As we walked in the house, there was a shrine-like area for Bob. All through the house, there was evidence that time had stood still for them since Aug 7, 1978, the day Bob took his life. It was actually devastating for me. But my grandparents were more than welcoming and sweet to us. I’m so glad I got to spend that time with them.

Willie died in 2001 of complications of Type 2 diabetes… A short time later my sweet Aunt Gay died of uterine cancer. Trudy died about six years later of a stroke — she lived to be 89-years old. Bruce is still living as well as Bob’s two first cousins who have been wonderful in helping me to understand Bob and the family as a whole.

It’s hard for me to reconcile the fact that Bob ended his life, period. But when I read some of the letters he had written to his family when he was in Vietnam, I think about how clever and funny he was. (Now I know where I get it — haha) But seriously, he seemed to be very casual in those Vietnam letters he wrote to his family (the one above was probably written after basic training because it looks like he was still in the US). Was he just covering for the atrocities he was witnessing? His file states that his “job” in the Army was clerical but then it goes on to talk about the training he had, which included learning how to use rocket launchers and grenades. It’s just so hard to know. He was released almost two years after being drafted for injuries to his hearing. He had tinnitus, and it caused him a great deal of pain after his service to the Army. It’s natural to wonder if his pain went beyond physical, as it did for so many of our servicemen who fought in Vietnam.

I do wish I had known Bob. I think I would have really liked him. He was a leftie, like me! When I re-read his letter the other day, I was struck with an urge to call someone — to call him — and just laugh about the casual tone of the letter and the crack about being too cheap to buy a birthday card. That is SO me.

I think he would have liked me and it’s a shame we didn’t get to have that chance.

Gut Instinct

As I’m only two and a half weeks away from having a hysterectomy, I’ve been reflecting on the past four months since learning of my BRCA status. I’ve learned so much since then because I’ve immersed myself in research and information pertaining to my harmful hereditary mutation. My gut instinct is telling me that I am doing the right thing by proceeding with this surgery.

I’ve met some new friends by way of social media and databases and then I made even more friends through those new friends. In an effort to rally a circle of support, I have found two ladies who share my exact same mutation (and I’m searching for more). There is something very comforting about knowing others with the same mutation, oddly enough. There’s a group on Facebook where I’ve found hundreds of women from all over the world who share their stories. All of them have a mutation in either BRCA1 or BRCA2 and reading their stories makes me have more questions than I have answers but that’s okay! It’s fascinating, enlightening, terrifying, heart-warming, frustrating, encouraging, and sometimes even downright funny to read about their journeys.

I like to be thorough and thoughtful. Therefore, I thought it would be wise and moral to share my BRCA status with anyone else in my biological family who may be affected by this (besides my birth mom and daughters, who already have all the information), which included sending everything I knew and a copy of the comprehensive test data from the testing lab to my first cousin, my uncle, my aunt, and my biological mother’s first cousin, who revealed that her sister had been diagnosed with breast cancer a year ago. I waited until about three weeks ago to share my findings with my aunt — I don’t know why. My birth mother tells me about some of their conversations so I guess I probably knew that her response would not be what I wanted to hear. My uncle and one of my first cousins never responded at all but that’s okay because I just wanted them to have the information in case they wanted to do anything about it — if nothing else, for their children. My biological mother’s first cousin told me she loved me for thinking about her but she’s not interested in getting tested because she’s more worried about her heart than anything else.

But then there was my aunt… Her email said that she had concerns that my approach to all this isn’t as well-thought out as I think it is and that I don’t have all the information, including the fact that I’ll be entering menopause upon completion of my surgery, which means I have to worry about bone density and side effects of medication. She said she had no interest in being tested for BRCA mutations because she would never do anything as “radical” as having surgery as a preventative measure. I took a few days to think about what she had to say. I was frustrated by her assumption that I hadn’t done my homework because anyone who knows me knows I overthink things to a fault. She’s not wrong in being concerned about side effects, osteoporosis, and hormones but I don’t think she’s right in telling me what I’m doing is “radical”. It feels like using the term “radical” is only being used because I’m approaching surgery as a preventative measure. It was her sister (my aunt) who passed away a year ago from a 14-year journey fighting ovarian cancer. If my doctor is actually recommending surgery, I don’t think I’m crazy to opt for it. (I can’t wait until she finds out I’m probably going to have a double mastectomy with reconstruction too…) So we agreed to disagree, I think.

Around Christmas time, I shared a little bit of what was going on with my mom, who has turned out to be very supportive. She wrote to me a few weeks after I first shared everything with her and said that she’d been doing a lot of reading on the subject and thinks I’m doing the right thing. It’s nice to have her support.

In this life, I’m getting a little bit better about going with my gut instinct. I’ve had my moments when I’ve thought I’m going to scrap the whole idea and cancel my surgery because the timing was a little messy but I can’t ignore that nagging in the back of my mind. I just have to listen to it and for those who are willing to let me trust my instinct, I am very grateful for the vote of confidence.

Eyes: 20/20

I had my eye check-up today as per my doctor. The BRCA gene mutation is ALSO associated with melanoma of the eye so in order to do proper screening, I went ahead and got my eyes checked too. This was the last screening I had to do to ensure my BRCA mutation is behaving itself. I got a great report on my eyes — they are in perfect health and my eye sight is 20/20 too. It was the first time in my life I went to an eye doctor who didn’t try to sell me glasses. That’s not to say I don’t need my readers (+1.25) for the small print moments but the doctor said that was A-Ok.

When I got home my daughter accused me of being on acid because my pupils were so dilated.

How would she know what being on acid looks like anyways…

Who do you think you are?

There was a television show called Who Do You Think You Are? that highlighted a famous person’s journey into their ancestry and they would often uncover surprising, exciting, or heartbreaking events. I just loved that show. I often said that I’d find it equally as compelling to watch if they had pulled random Joe Schmoes off the street to highlight their stories. Everyone has a story.

My parents had three biological children and then they adopted three children. My brother and I came from the same children’s home (from different families). When I was 5-years old, my parents adopted a third child, another girl, to complete the family. Between the biological and adopted, we had three boys and three girls. The span in ages, from youngest (me) to oldest, was 12 years.

Growing up in a big family was fun. I have happy memories, though the two oldest of my siblings were out of the house and starting their own adult lives when I was still little so we weren’t very close until later in my adult years. I remember my brother, Kenny, talking about someday finding his biological father. He never talked about finding his biological mother very much, other than to be able to find his father. For me, I never really cared to search for my biological family, though I did wonder (often) if I had ever laid eyes on my birth mom and if I would recognize her. My sister, Mary, never had very much to say on the matter until her adult years when she converted to Mormonism and it was necessary to research her biological family tree. The problem was that her story began as a baby being abandoned in front of a theater in Seoul, Korea. There wasn’t much to work with…

When I was in high school, my mom approached me to let me know that if I ever wanted to find my birth mother, that it was okay and she was completely supportive. My dad felt the same way. I appreciated them saying so — it was nice to know where they stand — but I still wasn’t considering it.

Fast forward many years… In 1993, I was married and had my first daughter, Danielle. My mom and my (ex) husband would talk about my daughter and somehow it would always come back to encouraging me to find my biological family. So as I would look at my sweet baby and think how strong would you have to be to walk away from your own child, I decided I would write a letter to the children’s home. In my mind, giving a child up for adoption just had to come from a place of real love for that baby, or even love for life. There was no other way.

I sent the letter to Waverly Children’s Home in Portland, OR in November of 1993. I was on vacation when I received a call just after the new years from a woman (Kathleen C, a counselor at Waverly) who told me to sit down… She wanted to preface her news with the facts:

  • there is often very little medical history to share because the birth mothers are so young at birth that no medical history is available yet, and
  • often these reunions don’t work out because there’s too many expectations on either side.

And then she went on to tell me that for six years she had been corresponding with my birth mother, Kathy. Now that I had given my consent, she could finally give my contact information to my birth mother, who Kathleen said was quite persistent. I was 23-years old at the time. I hung up the phone thinking, “wow, she really IS out there”, as if I had been imagining her existence all this time.

The morning after I returned home from vacation, my phone rang and there she was, my birth mom, Kathy. It was Jan 9, 1994. From that point on, we spoke just about every day and talked for a couple of hours per phone call. We wrote letters and exchanged pictures. And then a month later, she and one of his sisters flew all the way from Portland, OR to visit me in Lynchburg, VA. I look a lot like her so there was no doubt. A year or so later my dad went to visit her in Oregon and he said the first time she giggled, he knew then that she was my birth mother. Anyway, Kathy and I were interested in learning about each other and there seemed to be few expectations, other than openness, on either side.

I was born in 1969 to Kathy who was unmarried and whose boyfriend, Bobby, couldn’t handle the thought of being a father so he broke up with her early on in her pregnancy. She was no longer welcome in the home she grew up in so she lived with a friend until I was born. Kathy doesn’t remember a lot surrounding my birth or afterwards but she does remember making the choice to give me away to a family who was looking to adopt a baby.

Kathy revealed more of the story behind my existence, which I will save for another time. It was heartbreaking. Looking back on that time and trying to put myself in Kathy’s shoes, coupled with wanting to know more about the origin of the BRCA gene mutation and straight up curiosity, it makes me want to do more research on my family tree. I have two family trees, adopted and biological, and they are equally interesting to me. So far I’ve been building up on the trees and have reached information based in other countries in some cases but one of these days I hope to delve into the stories behind the ancestors. With technology being what it is today, it’ll be much easier than it would have been before the internet.

Tomorrow, 1/9, will be the 21st anniversary of having Kathy be a huge part of my life and it has been such a blessing. I’m so glad I finally became open to the prodding of my daughters’ dad and my mom because if it weren’t for that, I might still be wondering about her. The truth is that I can’t imagine not having her in my life and I’m still learning about who I am and where my roots are grounded.

MRI guided biopsy

The night before my MRI guided biopsy was not great for sleep. In fact, I hardly slept at all. It was a combination of worry for my procedure/results and sadness for our cat we found that evening. It had been killed by a coyote and I had to be the one to tell my daughter, which I was dreading. I drove myself to the appointment. The appointment was set for 9:40am on Monday, the 22nd; I was checked in by 9:03am. The staff was running behind again but not by much, maybe 15 minutes or so.

Debbie, a nurse around my age, guided me to a changing room. She said I could leave my yoga pants on unless they were new, in which case they may contain copper (who knew…) so I changed to be on the safe side. Once changed, the doctor came to pull me aside to talk about the procedure. She repeated herself throughout the morning so I would never be left wondering what happened next. She seemed quiet and shy and didn’t make a lot of eye contact, but I liked her and trusted her.

Maria, another nurse who was maybe 20 years older than me, had me follow her to another room so she could stick me with the IV for when the dye gets slipped into my blood stream. This time I didn’t feel it at all. She was really funny so I liked her immediately.

Debbie and Maria would be working together throughout my procedure, one nurse for each boob I guessed. They brought me into the MRI room, same one as last time, and I noticed things I hadn’t before: the machine was made by GE and the bedding on the MRI machine where I would be laying face down was pink, not my favorite color but I guess when we’re talking about boobs everything just has to be pink, right?

Maria gave me ear plugs and ear muffs. They positioned me on the bed but this time my boobs had to be clamped in place. I wasn’t terribly uncomfortable by this but the clamps do compete for space around the rib cage and that sucked. I was reminded repeatedly that I must not move, not even to lift my head. But I was mostly comfortable. There was ample space for my face in the headrest and when I opened my eyes, I could see the reflection of people moving about in the room. They gave me a warm blanket because that MRI room is unreasonably cold. I’m sure there’s a reason for this but I couldn’t think of one.

It took a few minutes for them to push me into the machine. While they did, I practiced being calm and quiet, zenful. Maria gave me a ball to squeeze if I should feel like I was in pain or needed anything. I thought to myself that I wouldn’t need it because I’m an easy patient. This will be a breeze. When they pushed me into the machine several minutes passed while I still practiced easy breathing and calmness. Once in a while I would get the sensation that I didn’t have enough air so I’d open my eyes, which helped, oddly enough. But the battle between thinking I didn’t have enough air yet knowing the staff wouldn’t put me in harm’s way was raging, and I had a total meltdown in my mind. Before I knew it, I was squeezing that ball. Maria and Debbie came running to my aid, bless them. I told them I was so sorry — I knew I was causing a delay but I just didn’t feel like I could breath and maybe I could just position my head differently. They reassured me that this happens all the time and not to feel bad. They had a wonderful solution: taping a tube with forced cool air into the pocket where my face was. It was such a relief and it made the rest of the procedure doable even though the air was cool and I was already cold, I could breath so I was happy… “ish”.

Once the machine started taking images, maybe 10 minutes had gone by before they slipped the dye into the IV. This time the dye didn’t feel as weird. It felt cold but it didn’t hurt or feel good. Another 10 minutes went by and my time in the machine was done. The doctor went to look at the images so she’d know where to retrieve the breast tissue and to place the metal marker on each side. As she started to prepare for the biopsy, she once again started walking me through what was next. The numbing agent stung and she told me to try not to flinch. She did the same on the other side. Moments later she said she was making the incision… She said I would feel pressure and tugging, which I did but there was zero pain. The biopsy portion took less than 10 minutes. When the doctor was done, Debbie and Maria were by my side adding pressure to the incision site. I was still face down, where I remained for another 5-10 minutes. When they thought I was done bleeding they said they were going to let me roll over to my back, which is where it got interesting.

I rolled onto my back and immediately started to bleed again on both sides. This went on for quite a while. I was shivering like crazy so another nurse went to get my another warm blanket, which helped but the shivering didn’t really stop. I chalked it up to adrenaline. After about 35 minutes, Maria’s side (left) stopped bleeding so she added the Steristrip and reminded me to not remove it until it fell off on its own in a few days. Debbie’s side (right) just keep on bleeding. Another half hour went by and it didn’t stop. I was still shivering. They decided to move me to a different room so they could get the room ready for the next breast MRI patient. When I sat up I didn’t feel woozy or dizzy, I was fine. But as I looked around I couldn’t believe how much blood covered everything. It was alarming. The front of my gown had blood on it so I tried to cover it up a little bit so I wouldn’t freak out other patients who were just getting an MRI.

Debbie brought me to another stretcher in a back recovery room where she kept compression on the incision site for a while longer. About 45 minute went by when she decided she better have the doctor come take a look because I had been bleeding for nearly 2 hours. When the doctor came, Debbie mentioned that the bleeding had slowed down but it just wouldn’t stop. That’s when I got interrogated about medications… do I take aspirin? blood thinners? fish oil? I don’t — I don’t take anything, not one pill. So the doctor said to give it another 15 minutes or so and if it doesn’t stop, we will need to get me to a surgeon. Of course I was thinking, “oh no… not this week — it’s Christmas, I don’t have time”. Someone brought me yet another warm blanket. Debbie and I hung in there for another 15 minutes or so when it finally seemed that the bleeding stopped. I said, “Quick! Put on the Steristrip so it doesn’t start up again” and she put about 8 pieces on for good measure. The doctor came back with a tech from the Mammography Department, who had this compression tape to put over the Steristrips. After she put on the compression tape, she whipped out an ace bandage in which to wrap my upper torso. It was so tight but it felt kind of good to be contained. It looked like a ghetto corset and I had cleavage for the first time in my life. The doctor said I needed to stay for a while for monitoring. They checked me every 10-15 minutes to make sure bleeding hadn’t started again and then they finally let me go home, over 4 1/2 hours after I arrived. I never even got to Step 2 of this procedure, the mammogram, to ID the metal markers because they didn’t want the pressure of the mammogram to cause me to start bleeding again.

The drive home was easy. It started to snow. At some point the numbing agent started to wear off and I felt a deep aching pain on both sides and thought, they’re probably right… I should take it easy the rest of the day. But I stopped in to see my mother-in-law, who’s recovering from pneumonia and other lung disease related ailments (she was doing much better) and then I went straight home.

Tips I would pass on… The doctor doesn’t want you lifting anything heavier than your car keys so don’t bring much with you. (The nurses scorned me because I brought my crochet bag, which clearly weighed more than my car keys, oooops.) Also, don’t bother with a bra. It’s pointless and you won’t wear it home. Eat and drink light because you’ll be lying face down. Keep your hair away from your face — I braided mine, which Debbie and Maria loved. I was really sore for several days after the procedure. It’s a week later and I have a huge black bruise on my left side (the side that quit bleeding first) and it is still sore so take it easy; give yourself time to heal. (The side that wouldn’t stop bleeding is still tender a week later but doesn’t have much of a bruise at all.)

My results didn’t come back the next day. That would have been awfully soon, I told myself, but the doctor promised them by Wednesday (Christmas Eve) at the latest. I tried not to think about the results as I grappled with reality that it felt like I had done about 85 too-many push-ups. I hurt. On Wednesday, I drove a long distance to pick up another kitty for my daughter. On my way home, I got the call from Regina at Kaiser — super bubbly — telling me she had GREAT news just in time for Christmas. And it was great news, no cancer; just “fibrocystic changes” and that they’d see me in 6 months for my next mammogram.

Next up, hysterectomy scheduled for 2/20/15, unless they can move me to an earlier date. I’m now seriously considering a Prophylactic Double Mastectomy. I’m not sure I can deal with the anxiety of wondering if they’re going to find more spots on my breasts and having to go through all that year after year. I’m currently undecided but gathering data…